We spent the afternoon with family today. Good food; good conversation; neice, nephew and cousins to chase after Drake so I could actually enjoy the food and conversation; and the clouds parted just in time for a lovely easter egg hunt outside. Drake still didn't quite get the concept of hunting for eggs, but it was still fun while it lasted (I think he found 4 or 5 eggs). It was a great break from the whirlwind month we've had.
Drake was back in the hospital for a status seizure last week. He stopped breathing in the ambulance and had to be intubated this time. He spent two days on the ventilator and one more day in the hospital for recovery and med adjustments (at least we got one of the big posh "new" rooms this time!). Thankfully this time he did not seem to suffer any regression. I don't think I could have handled two big hits in one month.
He came home from the hospital the day before his third birthday. Since we knew from experience he'd need some additional time to recover, we've postponed the birthday celebrations until next weekend. We did have his favorite General Tso's chicken, cake and presents from mom, dad and brother the day of his birthday; even though he wouldn't have known the difference, we couldn't let the actual day go completely unacknowledged.
The biggest news of the month is that Drake was accepted for Medicaid/home health care waiver. This means he'll begin receiving in home nursing care very soon. Unless you care for a special needs child, you can't begin to know what this means to us. We'll finally be able to get stuff done around the house. Our poor yard will no longer be completely neglected. Heck, we might even get that garden we've been talking about for years in this year. DC and I will actually be able to go out on dates from time to time (it's been about 8 months!). Kevin will finally have parents with a little free time to help him with homework or just spend time playing with him. Our lives are once again about to change drastically!
Now, if only the van weren't falling apart. And the garage were cleaned out. And the back deck wasn't rotting. It just never ends. But somehow, we keep muddling through. :)
The biggest news of the month is that Drake was accepted for Medicaid/home health care waiver. This means he'll begin receiving in home nursing care very soon. Unless you care for a special needs child, you can't begin to know what this means to us. We'll finally be able to get stuff done around the house. Our poor yard will no longer be completely neglected. Heck, we might even get that garden we've been talking about for years in this year. DC and I will actually be able to go out on dates from time to time (it's been about 8 months!). Kevin will finally have parents with a little free time to help him with homework or just spend time playing with him. Our lives are once again about to change drastically!
Now, if only the van weren't falling apart. And the garage were cleaned out. And the back deck wasn't rotting. It just never ends. But somehow, we keep muddling through. :)
