that I'm terrible at this blogging business. lol I just never think there's anything worth posting here. Little tidbits each day just seem better left to Facebook - so if you're looking for more frequent updates, join us on Facebook (link is at the bottom of the homepage). :)
We're seeing an increase in seizure activity again. :( Drake had three tonic clonic (grand mal) seizures on Labor Day and had another this evening. Not sure what's causing the sudden increase - we hadn't seen a tonic clonic since March! We did have some blood work done last week that showed one of his med levels was high...we're doing repeat blood work tomorrow to double check. If his levels are truly high, it's possible that his body is just not metabolizing that med efficiently anymore, which could be the cause of these sudden seizures. If that's the case, we'll probably be trying another med change. Changing meds is always so scary though - we just never know how he's going to react to something new. We could try the ketogenic diet - but it's such a regimented diet that I don't think we would have success with our crazy schedules right now. Will look into it more seriously after the first of the year.
Drake also had a speech evaluation yesterday. As we already knew, they found his receptive and expressive language skills (listening/understanding and speeking) considerably delayed. He begins weekly speech therapy next week. So, now I'll be carting him the 33 mile round trip drive three days a week, plus he has "school" one day a week and will begin having early intervention visits every other week in the near future. Talk about crazy busy schedule! Good thing he loves to go for rides in the car/on the bus. :)
We're seeing an increase in seizure activity again. :( Drake had three tonic clonic (grand mal) seizures on Labor Day and had another this evening. Not sure what's causing the sudden increase - we hadn't seen a tonic clonic since March! We did have some blood work done last week that showed one of his med levels was high...we're doing repeat blood work tomorrow to double check. If his levels are truly high, it's possible that his body is just not metabolizing that med efficiently anymore, which could be the cause of these sudden seizures. If that's the case, we'll probably be trying another med change. Changing meds is always so scary though - we just never know how he's going to react to something new. We could try the ketogenic diet - but it's such a regimented diet that I don't think we would have success with our crazy schedules right now. Will look into it more seriously after the first of the year.
Drake also had a speech evaluation yesterday. As we already knew, they found his receptive and expressive language skills (listening/understanding and speeking) considerably delayed. He begins weekly speech therapy next week. So, now I'll be carting him the 33 mile round trip drive three days a week, plus he has "school" one day a week and will begin having early intervention visits every other week in the near future. Talk about crazy busy schedule! Good thing he loves to go for rides in the car/on the bus. :)