Today was one of those days that really reinforced my drive to get our fundraising goal met so Drake can receive his service dog as soon as possible. Nothing would make him happy from the time he woke up this morning. He did have an hour period that he was happy while he played in the pool as Kevin had his swim lessons in another area. Of course, he kept trying to run through the pool which resulted in falling and going under, so it was still very nerve-wracking for mom. This afternoon he had school - thankfully he LOVES getting on the bus. But when he got home we had a note that he had three complex partial seizures while there. And he was crabbier than ever as I tried to prepare dinner - banging his head as hard as he could on the kitchen floor and throwing (and shattering to smitherings) a glass bowl. Fun times. :/ There isn't much the dog can do for seizures like he had today - other than alerting caregivers during them, in the event he wasn't being watched closely. But OMG would the behavior disruption techniques have been wonderful today!
Yesterday we went and played with new friends. The Horner's youngest daughter Kaylynn has Dravet Syndrome and received a service dog from 4 Paws about a year ago. The boys had a great time playing with Kaylynn and her big sister Maddy and I thoroughly enjoyed spending more time with mom, Danielle, who truly understands everything we are going through with Drake and everything involved with obtaining and having a service dog. It's a huge bonus that they only live about 2-3 miles from us. Such a small world!
For those that haven't checked out the updated Fundraising Events page...we will be at First Fridays event in Downtown Perrysburg on July 2 (5-9pm) selling t-shirts and awareness bracelets.
Yesterday we went and played with new friends. The Horner's youngest daughter Kaylynn has Dravet Syndrome and received a service dog from 4 Paws about a year ago. The boys had a great time playing with Kaylynn and her big sister Maddy and I thoroughly enjoyed spending more time with mom, Danielle, who truly understands everything we are going through with Drake and everything involved with obtaining and having a service dog. It's a huge bonus that they only live about 2-3 miles from us. Such a small world!
For those that haven't checked out the updated Fundraising Events page...we will be at First Fridays event in Downtown Perrysburg on July 2 (5-9pm) selling t-shirts and awareness bracelets.